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Brazos Valley Center for Independent Living

Brazos Valley Center for Independent Living

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Surveys

Disability Surveys Available

June 3, 2015

If you or someone you know falls under one of the two categories listed below, please input your answers:

I am conducting research this summer with parents of adult
children with physical disabilities and adults with physical
disabilities. The study is investigating the impact that parents have
on the disabled child’s development. The survey will take
approximately 15-20 minutes to complete. If you or someone you know
would be willing to complete the survey I would appreciate your
participation. Please forward these links on to anyone you know that
fits either of the below categories. Please click the link that
applies to you to be taken to the survey.

Thank you!
Lauren Long

 

Parent of an adult child with a physical disability:
http://qtrial2015az1.az1.qualtrics.com/SE/?SID=SV_8dN4Bk44vJH3stD

Adult with a physical disability:
http://qtrial2015az1.az1.qualtrics.com/SE/?SID=SV_07YVAwzILvkAvVb

 

Filed Under: Something to KNOW, Surveys

Child with CP? Share Your Opinion? Get $100.

April 13, 2014

Do you have an opinion about orthopedic surgery for children with cerebral palsy who walk?

 

The University of Hartford and the Shriners Hospital for Children are interested in your opinion if you are a parent or caregiver of a child who has cerebral palsy for whom surgery has been recommended to improve walking.

 

WE WOULD LIKE TO INTERVIEW YOU!

 

Our goal is to help families make informed decisions about surgery.  We need to know what information people need in order to make decisions about whether or not to have surgery to improve walking abilities of children with cerebral palsy.

 

Please contact Mary Gannotti, PT, PhD, at Gannotti@hartford.edu or call 860-768-5945 for more information or to sign up.

 

Participants will receive a $100 honorarium

Filed Under: Something to DO, Surveys

Brazos Valley Community Forum: What did we hear?

March 20, 2014

Disability Rights Texas LogoThank you to the team at Disability Rights Texas for making the trip to Bryan, TX on 3/19/2014 to listen to what our community has to say about disability-related issues.

If you were unable to attend and would still like your opinion to be heard, please complete the online survey by clicking HERE.

Here’s a brief overview from the 3/19/2014 community forum:

Who was there?

Disability Rights Texas Team Members:

  • Mary Faithfull, Executive Director;
  • Lydia focusing on education;
  • Susan focusing on community integration;
  • Steve representing policy issues;
  • Leah focusing on housing, employment and transportation.

Local community groups and organizations in attendance:

  • Brazos Valley Center for Independent Living
  • FACETS
  • Early Childhood Intervention (ECI)

In addition to the community groups and organizations, a few individual community members were in attendance.

What did we hear?

  • EDUCATION
    • Difference in the types and quality of services offered from one school to another — even in the same district;
    • Concerns about transition planning either being non-existent or not emphasized;
    • School Resource Officers and law enforcement in general need to receive training on working with youth with disabilities;
    • School district personnel misinterpret confidentiality laws when they deny parents the right to observe children in special education classes.  A specific example given was a parent not being allowed to observe his/her own child without the written consent of the other parents of children in the same classroom.
  • HOUSING
    • Difficult for certain individuals to obtain rental housing based on past history – many of these individuals have mental health disabilities;
    • Limited availability of accessible rental units and sometimes the accessible units are rented to people who do not require them making them unavailable for someone that does;
    • Waiting list for the Housing Choice Voucher program.
  • EMPLOYMENT
    • Some people lose jobs because of outbursts (or similar) in the workplace.  The outburst would have been preventable if appropriate supports (such as job coach and/or vocational rehabilitation counselor) had been in place for the employee and the employer.
    • Workplace supports need to be identified and made available before a critical problem in the workplace exists.
    • A few employers have the practice of not providing Sign Language interpreters during the interview process only during the hiring process.
  • TRANSPORTATION
    • Public transportation is not available on nights, weekends or holidays;
    • No accessible private transportation.
  • COMMUNITY INTEGRATION
    • Long waiting lists for waiver programs;
    • Individuals don’t learn about waiver waiting lists early enough in the process to deal with 10+ year waitlists;
    • ECI is helping parents sign their children up for waitlists;
    • Difficulties in understanding Medicaid Managed Care;
    • Providers have a lot of difficulty with medicaid reimbursements being denied because of fluctuations in client eligibility. This causes some providers to not accept medicaid and for those that do, it severely restricts the quality of services they can deliver.
  • POLICY
    • Department of Justice has funds available to local law enforcement agencies to make GPS tracking devices available to families who have children at risk of wandering.  These funds can be accessed through the Byrne Grant program – for more information click HERE.

Thanks for reading!

 

 

 

Filed Under: Advocacy, Surveys

Your Input is Needed: Survey Regarding Parental Support Needs

December 10, 2012

Greetings!! The School of Social Work at the University of Minnesota is seeking your assistance in recruiting parents with disabilities and their family members to participate in a worldwide research study on the parental support needs of parents with disabilities. The purpose of this research is to learn from parents with disabilities and their family members about the parental supports that are needed and helpful to them in raising their children. This information will be used in efforts to enhance parental supports for parents with disabilities.
Parents with disabilities AND family members of parents with disabilities are invited to complete a short and anonymous on-line survey about parental supports for parents with disabilities at: http://www.surveymonkey.com/s/VQQN88K
I would appreciate it if you could help distribute this survey web address to any parent with a disability or family member of a parent with a disability who may be interested in completing the survey. If you, parents, or family members have any questions, feel free to contact me at tcsurvey@umn.edu or call 612-624-4734.
Thank you for your assistance.
Liz Lightfoot School of Social Work University of Minnesota

Filed Under: Surveys

The Survey Says….

November 26, 2012

Help Improve Healthcare for Adults on the Autism Spectrum

AASPIRE has created a survey that helps people on the autism spectrum
share personalized information with their healthcare providers. The
information is meant to help healthcare visits go more smoothly. We are
now doing a study to make sure that the survey works well.

You may be able to participate in the study if you live in the U.S. and
•       You are an adult on the autism spectrum or
•       You assist an adult on the autism spectrum with healthcare appointments.

You would take the survey two times.  Each time, it would take about 30
minutes. You can take the survey over the Internet, or, if you live near
Portland, Oregon, you can take it in person. If taking the survey over the
Internet, you have the option to have the computer read the survey
questions and answers out loud. Adults on the spectrum can take the survey
with or without the help of a supporter. It is important that you complete
both surveys.

If you take part in the study, you will be paid $5 for the first survey
and $25 for the second survey two weeks later.

To learn more, please contact:
Angie Mejia at (503)494-1207 or studies@aaspire.org.

More information is also available at
http://aaspire.org/?p=projects&c=hc2b_screening

OHSU IRB #5580
Principal Investigators:
Christina Nicolaidis, MD, MPH, Oregon Health & Science University
Dora Raymaker, MS, Autistic Self Advocacy Network

Filed Under: Surveys

Chance to Win $50 & Help Improve Education / Agency Collaboration

November 9, 2012

Clipart of a person checking a box with a pencil.I am currently collecting data for a study investigating secondary transition experiences and usage of DARS/DADS and need your help. I am seeking parents of individuals with intellectual disabilities, whose child graduated from a Texas high school, and who can recall their secondary transition experiences. (current law states a transition plan to assist your child in moving to life after high school should be in place by the age of 16).

If you fit this criteria, please go to the following link to complete the survey: http://www.surveymonkey.com/s/3M3FFV8 , if your e-mail does not allow you to press the link to be taken to the site,  you can copy and paste the link into the browser to take the survey. The survey has 26 demographic questions and 58 survey questions, takes approximately 45 minutes to one hour, and can be completed in more than one session if you use the same computer, browser, and your computer saves cookies.

If you do not fit this profile, please forward this announcement to anyone you know who fits above criteria (parents of individuals with intellectual disabilities, whose children graduated from a Texas high school, and who can recall their secondary transition experiences). Participants will qualify for an opportunity to win 1 of 4 $50 gift certificates to Wal-Mart. I appreciate your help.

Jaime Betancourt Duran

Texas A&M University
Department of Educational Psychology
MS 4225
College Station, TX 77842-4225
Phone: 956-605-1187
Fax: 979-862-1256

Filed Under: Surveys

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